Duet & Her Family

We hope that learning about Duet’s journey—and the stories of other families affected by BPAN—inspires you to join us in supporting critical BPAN research. With increased awareness and funding, Duet and others living with this rare disorder can look forward to longer, healthier, and more fulfilling lives. Music is the key to making that future possible.

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Be sure to scroll to the bottom of the page and visit the links to Duet’s brother’s pages. Lake Anthony is on a mission to use his musical talents to raise awareness for his sister’s rare neurological disorder. Through music, he is helping drive attention toward BPAN research, with the hope that a cure will be found—and that he and Duet can grow up strong and healthy together in the years ahead.